• Disability issues

    The ‘Before’ And The ‘After’

    Is this what my life has become? I’m sure we have all seen magazine pieces or shows on TV where we can look at a person’s ‘before’ and after’ story. It could be their weight, re-doing their home or having a beauty make-over. Certainly here in Britain we have plenty of them. I didn’t realise I was a ‘before’ and ‘after’ person until I wrote this post, even though I’m sure I’ve written in those terms in other posts! Anyway, before I bore you and myself to death let’s get on. We have a heatwave in the UK at the moment.  This is very difficult for those of us who…

  • Disability issues

    How Small Things Can Sometimes Be Huge

    And how it can make a difference In my life the smallest things can make the biggest difference.  Today my senior carer told me that are putting time in my care plan to wash my hair once a week.  This has made my day.  It’s a relatively unimportant thing in the grand scheme of things at the moment but for me it’s huge. Back in the day when I was living my ‘normal’ life, I would get up and shower every morning.  It was my routine and I washed my hair everyday.  I have very thick hair so I would often wake up looking like I’d got a bush from…

  • Disability issues

    Why do I think of myself as not normal

    And does it really matter? I love watching travel and wildlife programmes. I find them quite peaceful and easy to watch, especially before going to sleep. The cinematography is stunning. They inspire me to want to see these places and things for myself. I am thinking about things I would like to be doing or things I wish I could do. I always think ‘if I was normal I could be doing that’ . What is this ‘normal’? I spend most of my time writing about how disabled people should not be seen any differently to able-bodied people, about accessibility, about attitudes, and yet, in my private thoughts, I am…

  • Disability issues

    How My Life Changed Almost Overnight

    And what I’ve learned In 2004 fear took over my life. This is when the first symptoms of MS began, and I had no idea what was happening to me. I went from a fit, active person to someone who could only walk a short distance, had difficulty driving, could no longer type with both hands and so many other things. Almost overnight. The fear was intense, I suffered panic attacks, I cried a lot, lashed out at my husband and he at me. This was completely alien to me, we had been married for a long time and for the most part happily. Neither of us could understand why…